Paper: Local responses to palliative care needs in the Rohingya refugee response: Lessons learned from the experience of the Fasiuddin Khan Research Foundation (FKRF)

Paper details

Paper authors Farzana Khan
In panel on Palliative care in humanitarian action: Moving from awareness to integration
Paper presenter(s) will be presenting In-Person / Online


The Fasiuddin Khan Research Foundation (FKRF) is a Bangladeshi non-profit charity, which envisions a world defined by compassion, where all individuals, especially those residing in challenging humanitarian settings like refugee camps and urban slums, have fair and equal access to the essential resources required to achieve optimal health and well-being, regardless of their socio-economic status. Providing quality palliative care in such vulnerable settings is a critical and complex endeavour, which has been overlooked and poorly invested in. In November 2017, we conducted a cross-sectional survey involving 311 patients with incurable diseases and their caregivers, in collaboration with World Child Cancer, to assess palliative care needs among Rohingya refugees in Cox's Bazar. A significant portion of individuals facing serious health issues reported experiencing substantial pain (62%), and the treatments for pain were mostly ineffective (70%). We established the first home-based palliative care program in Rohingya camps and expanded access in collaboration with partners including the United Nations International Organization for Migration (UN-IOM). In this presentation, I will share our experiences of multifaceted dimensions of palliative care delivery in an evolving humanitarian response including some of the challenges we faced, and lessons learned.